7th European Conference on Rare Diseases and Orphan Products

The European Conference on Rare Diseases and Orphan Products (ECRD) is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders: patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.

ECRD covers research, development of new treatments, healthcare, social care, information, public health and support at European, national and regional levels.

ECRD provides the state of the art of the rare disease environment, monitoring and benchmarking initiatives.

Why attend ECRD:

Network with all stakeholders in the rare disease community
Learn about the current landscape of policy development on orphan products and rare disease therapies
Contribute to addressing the challenges of healthcare pathways
Understand the opportunities in rare disease collaborative clinical research
Hear about challenges and experiences in disease specific registries
Contribute to the discussion on how to improve gene testing, genetic counselling and newborn screening at the European level
Get insight into how to sustain attractiveness for companies to invest in rare diseases
Hear about the challenges of off-label use and access
Learn about the discovery process of a medicinal product from the point of view of industry and regulators